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This event has been cancelled due to lack of attendance. We will schedule more events in Colorado Springs later in the year.
Thank you for your understanding!
On March 27th we will hold the first annual Colorado Statehouse Day for Bleeding Disorders at our beautiful State Capitol in Denver. You and your family will get the opportunity to speak to your local representatives about bleeding disorders and the issues that are critical to our community.
No experience or prior knowledge of the issues necessary! This is a guided experience provided by NHF Colorado and the National Hemophilia Foundation. Training will be provided Sunday evening, March 26th, to prepare you for our time at the Capitol!
•Advocacy training & 'How to Talk to your Legislator' from NHF public policy experts & professional lobbyists;
•Presentation on current Colorado political landscape and healthcare policy issues;
•Education of 'How to Craft Your Story';
•Breakfast Monday morning at the Capitol with legislators;
•Opening remarks from Rep. Joann Ginal, a longtime healthcare advocate;
•Guided conversation with YOUR legislator! Great for the WHOLE family!
*Program note: This is for ALL bleeding disorder patients and their families. Hemophilia, vWD, platelet dysfunctions, rare factor deficiencies are all welcome!
Save the Date Details:
Sunday March 26th: Advocacy Training (mandatory in order to attend Capitol Day): 4:00pm-7:00pm
-Training location TBD (will be in metro Denver)
Monday March 27th: Captiol Day: 7:00am-2:00pm
*A hotel room will be provided to participants traveling more than 50 miles from Denver.
Education Days is an annual program dedicated to providing up to date information about what is going on in the World of bleeding disorders for anyone in the bleeding disorders community. This event is open to families of individuals of all ages. Every year we have a large list of different presentations We include presentations from many different topics from experts on the subjects.
Below is list of a few of the Topics and Presentations for this year.
•Healthcare and Insurance Updates
•Von Williebrands Disease Presentation Track
•Walk and Summer Camp Sign Up
•How to accurately Identify bleeds and injuries
•Physician and Pharmacist Panel on Current and Upcoming Treatment Options
•How to make and keep healthy joints
And many more!
Registration is now live! Please click on the RSVP button in the top right corner to start the registration process.
Please contact Sean in the office with any questions about the event!
Come join Chapter and HTC Nursing staff for our first program in the Self-Infusion Clinic series!
This program is designed to give patients the chance to learn and practice self-infusion skills under the medical supervision of the HTC nursing staff. This program is open to all who would like to learn how to self-infuse as well as those who just want to refine current skills. This program is a great opportunity for patients with mild, moderate, vWD or any other diagnosis that often does not get the chance to try these skills out to come and practice in a safe and supportive environment!
Food and Beverage will be provided
To RSVP please follow the registration process below or contact Sean at the office with any questions around the event.
This event is RSVP only
We hope to see you there!
Easy Brews Beer Festival
Join us for a summer afternoon full of local and regional craft beer, food trucks of all types, live entertainment and view of the beautiful rocky mountains!
Come take it easy with us for an afternoon of local and regional craft beer, food trucks of all types, and live entertainment! Your ticket includes a souvenir tasting glass and unlimited one ounce beer tastings with all participating breweries -- and of course, all of the entertainment we can squeeze into the afternoon.
The festival is all ages; however, you must be 21 or over to consume alcohol so bring your I.D. (you will be asked for it upon entry)! Only ticket holders will be allowed to partake in beer samples. The event is rain or shine so check the weather before you come!
Family Camp is the only program of its kind in the state of Colorado. This program provides families, affected by bleeding disorders, an opportunity to connect with their families and peers. Families come together in a traditional camp setting to meet others that are experiencing the same health issues, helping them to develop a stronger support system that will decrease isolation and frustration. For all ages!
Leadership Retreat: Milehigh Summer Camp
Camp 2017 dates are back!
Leadership is for campers 14-18 years old. This the per-retreat weekend where the older campers get to have a unique camping experience with skill building around mentoring and outdoor activities like rafting.
Camp forms will be available later this year.
For more information on camp please click on the link below.
Milehigh Summer Camp
Camp 2017 dates have been confirmed!
Mile High Camp is a camp hosted by The Colorado Chapter of the National Hemophilia Foundation and The University of Colorado Hemophilia & Thrombosis Center. Mile High Camp serves campers affected with hemophilia, von Willebrand’s disease and other rare chronic bleeding disorders from Colorado, Wyoming, Montana, and Nebraska.
Camp forms will be available later this year. For more information on camp please follow the link below